Research project — NeGen SOS
What’s new
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Facing our risk (FORCE) blog post
Facing our risk (FORCE) recently featured our research on ‘social media for carriers of hereditary cancer syndromes’ on their blog. –> read the post here We analysed 1000s of pubic social media posts that mentions BRCA or Lynch syndrome and conducted interviews with 58 mutation carriers who share content about hereditary cancer on social media. […]
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Article for ‘The Conversation UK’
Stefania Vicari wrote a piece for The Conversation UK with Hannah Ditchfield to discuss how helpful social media content gets treated by platform algorithms. Read the article here The article is based on our interviews with dozens of people from around the world, especially women, who share their experience of hereditary cancer on social media. […]
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Keynote at Illness Narrative Retold Conference
On the 2nd of June 2026, NeGen-SOS Principal Investigator Stefania Vicari delivered a keynote at the conference Illness Narrative Retold – Diversity, Temporality, and Digitization – at Aarhus University. Stefania presented findings from NeGen-SOS’ sister project Previvorship and concluded her talk with an open question on the shape and values of illness narratives in contemporary […]
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Website and logo launch
Welcome to the New Genetics, Same Old Surgeries? project website. Here you can find more about the research we are doing, our questions and methods, the people involved and previous research connected to the communication of hereditary cancer. Our website and logo were thoughtfully designed by Eyedea Studio, with careful consideration given to our project’s […]
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AliveAndKick’n podcast with Dave Dubin
This month, Stefania and Hannah spoke with Dave Dubin on the AliveAndKick’n podcast. In the episode, they talk about how they came to research hereditary cancer (and specifically Lynch syndrome) as well as share some of their findings from their previous research on Previvorship in the Platform Society. We also reflected on our research priorities […]
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Final Previvorship in the Platform Society report
The final report from the project Previvorship in the Platform Society is now out inthe world! Prior to the start of the NeGen-SOS project, Stefania Vicari and Hannah Ditchfieldworked for just over three years (2022-2025) to explore the role of everyday socialmedia for individuals at high risk of cancer. The final report draws on social […]
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