Research project — NeGen SOS
news
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Facing our risk (FORCE) blog post
Facing our risk (FORCE) recently featured our research on ‘social media for carriers of hereditary cancer syndromes’ on their blog. –> read the post here We analysed 1000s of pubic social media posts that mentions BRCA or Lynch syndrome and conducted interviews with 58 mutation carriers who share content about hereditary cancer on social media. […]
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Keynote at Illness Narrative Retold Conference
On the 2nd of June 2026, NeGen-SOS Principal Investigator Stefania Vicari delivered a keynote at the conference Illness Narrative Retold – Diversity, Temporality, and Digitization – at Aarhus University. Stefania presented findings from NeGen-SOS’ sister project Previvorship and concluded her talk with an open question on the shape and values of illness narratives in contemporary […]
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Website and logo launch
Welcome to the New Genetics, Same Old Surgeries? project website. Here you can find more about the research we are doing, our questions and methods, the people involved and previous research connected to the communication of hereditary cancer. Our website and logo were thoughtfully designed by Eyedea Studio, with careful consideration given to our project’s […]
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AliveAndKick’n podcast with Dave Dubin
This month, Stefania and Hannah spoke with Dave Dubin on the AliveAndKick’n podcast. In the episode, they talk about how they came to research hereditary cancer (and specifically Lynch syndrome) as well as share some of their findings from their previous research on Previvorship in the Platform Society. We also reflected on our research priorities […]
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