Julian Barwell is a Consultant Clinical Geneticist at the University Hospital of Leicester and has an honorary professorship in genomic medicine at the University of Leicester. He was the rare disease lead for the 100,000 Genome Project in Leicester and chaired the Public and Patient Involvement group for the East of England Genomics Medicine Centre. He launched the Cancer Genomics arm of the national project on the BBC Breakfast sofa for the Department of Health. His main interests are in co-creation projects with familial cancer stakeholder groups, including patient-facing digital and personalised medicine solutions for 21st century healthcare. Julian is currently establishing a national Fragile X Syndrome holistic care hub the University Hospitals of Leicester.