Kate Weiner is a Senior Lecturer in Sociology at the University of Sheffield (UK). Kate works at the intersection of sociology of health and illness and social studies of science and technology. She has an enduring interest in how people understand health and illness, in everyday health practices, and how these intersect with health care […]
Hannah Ditchfield is a Research Associate in the department of Communication and Media at Loughborough University (UK) where she researches digital communication on social media platforms. She has previously worked with Professor Vicari on Previvorship in the Platform Society, where she interviewed BRCA and Lynch syndrome genetic mutation carriers about their experiences of using (or […]
Caroline Mitchell MBChB MD FRCGP DRCOG PGCertMedEd is a Professor of General Practice Research and Health Equity and General Practitioner. She is a clinical academic expert in qualitative community-based participatory methods, mixed methods research, and clinical trials, with a focus on co‑designing and evaluating complex interventions in primary care. She has led internationally recognised participatory engagement […]
Malgorzata Iwaniec-Thompson is a Research Associate in the School of Information, Journalism and Communication at the University of Sheffield (UK). Her work sits at the crossroads of science communication and education. Her work identifies the key themes, concerns, and narratives that emerge in digital spaces through applying a mixed methods approach. Before joining NeGen-SOS, she […]
Laura Monje-Garcia (bio to come)
Neil Ryan PhD MRCS MRCOG is Senior Clinical Research Fellow and Honorary Consultant appointment in Gynaecological Oncology Surgery at the Royal Infirmary of Edinburgh and a CSO/NES Clinical Lecturer at the University of Edinburgh, based within the Centre for Reproductive Health and the Cancer Research UK Scotland Centre. Neil’s research has transformed the identification of […]
Tracy Smith is the Chair and Trustee of Lynch Syndrome UK, leading the charity with a clear strategic vision and a steadfast commitment to reducing inequalities in hereditary cancer prevention and care. As a Mum of 3 and grandmother to Lola and Rory, she brings a deeply personal understanding of the importance of early detection, […]
Wendy Watson MBE is the founder and director of the National Hereditary Breast Cancer Helpline. Following her pioneering risk reducing double mastectomy in 1993 Wendy felt impelled to raise awareness so others could make their own informed decisions and 1996 set up the National Hereditary Breast Cancer Helpline. The helpline, and Wendy’s advocacy, has helped […]
This month, Stefania and Hannah spoke with Dave Dubin on the AliveAndKick’n podcast. In the episode, they talk about how they came to research hereditary cancer (and specifically Lynch syndrome) as well as share some of their findings from their previous research on Previvorship in the Platform Society. We also reflected on our research priorities […]
The final report from the project Previvorship in the Platform Society is now out inthe world! Prior to the start of the NeGen-SOS project, Stefania Vicari and Hannah Ditchfieldworked for just over three years (2022-2025) to explore the role of everyday socialmedia for individuals at high risk of cancer. The final report draws on social […]